We are a family that has experienced and endured the journey of having a medically fragile child with a rare disease. A 9-year-old child that ultimately left this earth because of his rare disease, but not without greatly impacting our lives in so many positive ways.

 

Watch "The Austin Way" Video!

 

We've taken the impact Austin made on our friends and family to spread the "Austin 1st Way" with those going through their own rare disease journey.